Hospice Web Resources

Indiana Hospice and Palliative Care Organization: Founded in 1979, this statewide not-for-profit organization is dedicated to serving terminally ill Hoosiers and their caregivers, and the professionals who care for them.

National Hospice and Palliative Care Organization: The only non-profit public benefit organization devoted exclusively to hospice care. NHPCO is dedicated to promoting and maintaining quality care for terminally ill persons and their families and to making hospice an integral part of the U.S. health care system.

Aging With Dignity: Distributes the "Five Wishes" living will.

American Health Care Association: The American Health Care Association (AHCA) is a non-profit federation of affiliated state health organizations, together representing more than 10,000 non-profit and for-profit assisted living, nursing facility, developmentally-disabled, and subacute care providers that care for more than 1.5 million elderly and disabled individuals nationally.

American Academy of Hospice & Palliative Medicine: The American Academy of Hospice and Palliative Medicine (AAHPM) is an organization of physicians and other medical professionals dedicated to excellence in and advancement of palliative medicine through prevention and relief of patient and family suffering by providing education and clinical practice standards, fostering research, facilitating personal and professional development, and by public policy advocacy.

American Society of Law, Medicine & Ethics: Non-profit educational and research organization devoted to critical thought in health, law, medicine, bioethics and patient care. ASLME offers two nationally known peer-reviewed journals, as well as national conferences on emerging topics in law and medicine.

Alzheimer's Caregiver Support Online: AlzOnline provides state-of-the-art education, information, and support to persons caring for someone with a progressive memory problem. Faced with the reality of caring for someone with progressive memory or thinking problems, a family's life changes. How does someone learn to deal with all the changes related to caregiving?

The Center for Hospice, Palliative Care & End-of-Life Studies: at USF unites a major research university with community providers of hospice and palliative care in an equal partnership aimed at influencing policy and practice through research and education. The Center began informally in 1996, and was formally recognized by USF in 2000. The Center brings together members from hospices across West Central Florida, H. Lee Moffitt Cancer Center and Research Institute, James A. Haley Veterans Medical Center , and the University of South Florida . By facilitating collaboration among experts in end-of-life care who represent multiple disciplines, The Center is able to generate cutting edge research that addresses issues in hospice, palliative care, and end-of-life studies from a comprehensive perspective.

Dying Well

Dyingwell.org: Web site for caregivers, patients and families facing terminal illness, including writings, resources, and other information on end-of-life care.

GetPalliativeCare.org: The Center to Advance Palliative Care introduces getpalliativecare.org, a palliative care resource created for consumers that also includes sections for medical practitioners and policymakers. This new website is easy to navigate and provides clear, comprehensive palliative care information to patients and families coping with serious, complex illness.

Growth House: A non-profit organization that hosts support groups dealing with death and dying and provides links to a wealth of end-of-life information.

Hospice and Palliative Nurses Association: Established in 1986, the Hospice and Palliative Nurses Association is the nation's largest and oldest professional nursing organization dedicated to promoting excellence in pain management and end-of-life care.

Last Acts: Dedicated to improving end-of-life care through sharing of ideas and solutions by professional care givers, institutions and individuals.

Project GRACE: A non-profit education organization that provides education programs and resources in end-of-life medical care and advance care planning. Project GRACE offers a medical-scenario specific Advance Care Plan document.

Project on Death in America: The Project on Death in America (PDIA), an Open Society Institute initiative, has closed. From 1994 to 2003, PDIA worked to understand and transform the culture and experience of dying and bereavement. Over the course of nine years, PDIA created funding initiatives in professional and public education, the arts, research, clinical care, and public policy. PDIA and its grantees have helped build and shape this important and growing field, and have helped place improved care for the dying on the public agenda.

Caregiver Resources

  • AARP - Caregiving: Finding Help
  • Family Care Alliance
    This organization was the first community-based not-for-profit organization in the country to address the needs of families and friends providing long term care by developing services, advocating for public and private support, conducting research and educating the public.
  • National Alliance for Caregiving
    Serves as a national resource for caregivers of the elderly and the professionals who serve them.
  • National Family Caregivers Association
    A grassroots organization created to educate, support , and advocate for people who care for chronically ill, aged or disabled loved ones.
  • Rural Caregivers
    A non-profit organization designed to meet specific needs of rural caregivers.
  • Well Spouse Foundation
    A national, not-for-profit membership organization that provides support to wives, husbands and partners of the chronically ill and/or disabled.

Grief & Loss Resources